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Birthmarks.com provides this Internet resource guide to help you find the most up-to-date information on birthmarks, treatments, and related diseases. Resources include support groups, charitable foundations, publications, family websites, and even self-help resources.
General Resources For Birthmark Related Conditions
Foundations, Charitable Organizations and Resource Groups - Non-profit 501 (c) (3) Groups and other groups that specialize in the support and treatments for a particular disease or condition and/or promote education and resources.
- About Face - http://aboutfaceusa.org/ non-profit organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement, and to their families.
- American Academy of Dermatology - http://www.aad.org/ membership of more than 14,000 physicians worldwide.
- American Society of Dermatology - http://www.asd.org/ a non-partisan professional association of dermatologists across the country.
- American Society for Dermatologic Surgery - http://www.asds-net.org/ promote excellence in the subspecialty of dermatologic surgery and foster the highest standards of patient care.
- American Society for Laser Medicine and Surgery, Inc. - http://www.aslms.org/ the world's largest professional organization dedicated to promoting excellence in patient care by advancing laser applications and related technologies.
- Angioma Alliance - http://www.angiomaalliance.org/ non-profit international voluntary health organization created by people affected by cavernous angioma (cerebral cavernous malformations).
- Angiome - http://www.anomalievasculaire.org/ French language website for vascular anomalies.
- Birth Defect Research for Children, Inc. - http://www.birthdefects.org/ non-profit organization that provides parents and expectant parents with information about birth defects and support services for their children.
- Birthmarks.com - http://www.birthmarks.com the premiere resource site for support and information about vascular and pigmented birthmarks.
- Changing Faces - http://changingfaces.org.uk/ website in the UK dedicated to inform, challenge and inspire - and ultimately change the way we all see disfigurement.
- Children Anguished with Lymphatic Malformations - http://www.staycalm.org/ a non-profit organization formed in 1993 to provide support to families of children with lymphatic malformations.
- Children's Craniofacial Association - http://www.ccakids.com/ nonprofit organization dedicated to improving the quality of life for people with facial differences and their families.
- Children's Miracle Network - http://www.cmn.org/ non-profit organization dedicated to saving and improving the lives of children by raising funds for children's hospitals across North America.
- Cutis Marmorata Telangiectatica Congenita - http://www.cmtc.nl/HTML/eng_start.php Netherlands website for help and information on CMTC.
- DermAtlas - http://dermatlas.med.jhmi.edu/derm/ an international collaborative project that enables health care professionals, parents, and patients to access high quality dermatology images on the World Wide Web.
- Faces - http://www.faces-cranio.org/ dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
- Forward Face - http://www.forwardface.org/ to help children with craniofacial conditions, and their families, find immediate support that helps empower them to successfully manage the craniofacial condition.
- Hereditary Hemorrhagic Telangiectatica - http://www.hht.org/web/ non-profit organization whose purpose is to support patients and families and educate medical professionals.
- KidsHealth - http://www.kidshealth.org/ providing doctor-approved health information about children from before birth through adolescence.
- KT Foundation - http://ktfoundation.org non-profit organization to benefit those with Klippel-Trenaunay syndrome.
- Klippel Trenaunay Syndrome Support Group - http://www.k-t.org/ established to provide information about the group and about Klippel-Trenaunay Syndrome, and to provide families, adults with K-T, and professionals with links.
- Laser News - http://www.lasernews.net/ online journal for lasers and laser surgery.
- Let's Face It - http://www.faceit.org/ nonprofit network that links people with facial disfigurement.
- Lymphovenous Canada - http://www.lymphovenous-canada.ca/index.htm link people in Canada with dysfunctioning lymphatic systems with health care professionals and support groups in their communities and around the world.
- Med Help International - http://www.medhelp.org/ dedicated to helping patients find the highest quality medical information in the world today.
- Miracle Flights - http://www.miracleflights.org/ provides transportation via airplane to ensure that no child is denied medical treatment because of the inability to pay for transportation.
- National Health Law Program - http://www.healthlaw.org/ a national public interest law firm that seeks to improve health care for America's working and unemployed poor, minorities, the elderly and people with disabilities.
- National Institutes of Health - http://www.nih.gov/ agency of the Department of Health and Human Services, the NIH is the Federal focal point for health research.
- National Institute of Neurological Disorders and Strokes - http://www.ninds.nih.gov/ supporter of biomedical research on disorders of the brain and nervous system.
- National Organization for Rare Disorders - http://www.rarediseases.org/ 501(c) 3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
- National Organization of Vascular Anomalies - http://novanews.org/ dedicated to providing information and assistance on the diagnosis and treatment of vascular anomalies.
- Nevus Outreach - http://www.nevus.org/ non-profit organization that was founded by families affected by Large Nevi and Neurocutaneous Melanosis (NCM) to offer support and information to others who are similarly affected, improve awareness and education of the condition, and encourage and sponsor research that will lead to effective treatments and a cure.
- Operation Smile - http://www.operationsmile.org/ provides life-changing surgeries to children throughout the world suffering from correctable facial deformities.
- Proteus Syndrome Foundation - http://www.proteus-syndrome.org/ non-profit organization that raises money to find a cure for Proteus syndrome.
- Sensory Integration Network - http://www.sinetwork.org/ to help parents, teachers, therapists, doctors, and others learn about and understand Sensory Processing Disorder.
- Share A Smile Foundation - http://www.shareasmilefoundation.org provides financial support to children requiring plastic surgery and/or medical treatments to repair or remove vascular anomalies, but whose families are not financially able to pay for this service.
- Shyness and Social Anxiety Treatment - http://www.socialanxietyassist.com.au/ Australia - provides information about social anxiety, the treatment options, psychologists around Australia who treat social anxiety, group therapy & workshops, support groups, articles, resources and links to other sites.
- Sturge-Weber Syndrome Community - http://swscommunity.org a branch of the Vascular Birthmarks Foundation, providing support and services freely and upon a volunteer basis for individuals and families living with SWS and vascular birthmarks, while sponsoring research and promoting physician education and awareness, as well as education of the public at large.
- Sturge-Weber Foundation - http://sturge-weber.com non-profit organization dedicated to serving people with PWS, SWS, and KT and their families.
- Sturge-Weber Norwegian - http://home.c2i.net/ksletten/NFSW.htm Norsk Forening for Sturge-Weber syndrome.
- The Birthmark Support Group - http://www.btinternet.com/%7Ebirthmarksupportgroup/ provides a UK based support group for anyone with a birthmark.
- The Disfigurement Guidance Center -http://www.timewarp.demon.co.uk/dgc.html acts as an international information and resource bureau and gives information on treatments, literature, compensation and all other relevant services and facilities.
- The Hemangioma Treatment Foundation - http://www.hemangiomatreatment.org/ provides treatment to children who are affected by hemangiomas and other vascular birthmarks and educates physicians in the management of these lesions. This is an international organization that will offer support, treatment, and education based on need not country of origin.
- The National Neurofibromatosis Foundation, Inc. - http://www.nf.org/ non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).
- The Pediatric Glaucoma & Cataract Family Association - http://www.pgcfa.org/ Canadian website for Pediatric glaucoma and related eye conditions.
- Vascular Birthmarks Foundation - http://birthmark.org international charitable organization that provides support and informational resources for individual affected by hemangiomas, port wine stains, and other vascular birthmarks and tumors, sponsors relevant research and promotes physician education.
- VBF Europe - http://vbfeurope.org/ European website for support and information on vascular birthmarks.
- VBF Israel - http://birthmark.org.il Israeli website for support and information on vascular birthmarks (in Hebrew).
- Von Hippel-Lindau Family Alliance - http://www.vhl.org/ Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Landau disease
Support Groups/Individuals and Parents - Discussion boards and support groups for birthmarks and related issues.
Personal and Family Websites - Links to websites of individuals or families that tell about their experiences with pws, and related conditions.
Hospitals and Clinics - Hospitals and clinics that specialize in specific areas of vascular birthmarks.
Birthmarks.com Sponsors - Doctors
Birthmarks.com Sponsors - Lasers/Makeup and Cosmetics
Medical Airline Flight Programs - Contact information for low- or no-cost airline flights for children with medical needs. - Ped-Onc Resource Center Airline Flights
- Miracle Flights for Kids provides free access to health care for families who cannot afford transportation to treatment centers anywhere in America. They are not limited by distance and can provide as many flights as necessary to get a sick child to treatment.
- AirLifeLine 1-800-446-1231 Airlifeline is funded in part by Ronald McDonald's House of Charities. An organization of experienced pilots provide free transportation to needy adults and children.
- Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service.
- Angel Flight Europe is a charitable organization which arranges free long distance transportation in non-emergency medical situations. No fees are charged to the patient, the insurance company or any other entity for the transport. Angel Flight Europe serves the European Union and Switzerland.
Books, Publications, and General Resource Materials
Visit our website for a detailed description of these publications on our Recommended Reading List.
Self-Help Resources
Food
Massage
Meditation
Pilates
Psychological Help
Spas
Spiritual Help
Yoga
Birthmarks.com is not responsible for any content or the accuracy of the websites included in this Resource Guide. Birthmarks.com does not endorse or have any affiliation with any of the above-mentioned websites, companies, organizations, etc., nor promote or recommend any particular treatment, facility, group, faith, religion, organization, etc.
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